You may not control all the events that happen to you, but you can decide not to be reduced by them.
Hi there everyone,
It's me, A.
Hope you are all well and still remember me.
After I visited with the Movement Disorder Specialist (MDS) I couldn't write. I couldn't do me. I had to take time out to accept, compose myself, grieve and love myself again. I am not totally in a place that I would like to be, but right here is a good place to start.
Over the past few months, I have let very few people in. My family is my priority, and being happy and living the best life that I could live, with genuine love, respect, kindness, humour, and peace. After I visited with the MDS, I suddenly felt like Alice falling down the rabbit hole. I knew what to expect but hearing and listening to her confirm my future, sent me on a downward spiral.
What transpired in that office?
In a nutshell, there is nothing more that can be done. A recommendation was made - I should consider DBS surgery but for the Dystonia not the PD.
My medication increased to 6X daily. I realised that I need to remain true to myself and heal first before I can even begin to pick up the pieces. Yes, DBS is an option and but the risk itself is too high,(for me) right now. That is my decision🌷
I have decided to do this my way, on my terms. The past year has brought many bumps on the road but has also presented me with many opportunities to be happy.
It allowed me the chance to find myself, grow and realise that I am strong.
I hold the key to my happiness because that comes from within me. I will continue on my journey - yes there will be horrible days, I can't get out of bed days, and there will also be wonderful days. I choose to focus on these good ones.
I have realized, that I am happiest when I’m
out in the world, trying to make it a better place and helping others. I know that I will return to this space, even stronger than I was before.
is all I can do, and that’s okay.
I am so grateful for all that I have, a wonderful family and friends (who make me feel loved and I love dearly), the team of healthcare professionals who are like family to me, and the online support groups I have found, are awesome.
I felt alone for so long because I didn't know anyone with PD, who could understand exactly what I feel. Being able to identify with others and share experiences is so liberating.
This is me...
A new chapter on my journey...
My life with Parkinson's Disease :
The Uninvited Guest
Sending you lots of love and light